Celine Dion on health and treatment of rare syndrome: 'One day at a time' | music

Canadian pop star Celine DionHe, who suffers from a rare neurological disorder, said he was fine but alive “One day at a time”. This came in her first interview since the announcement of the diagnosis that made her cancel her shows.

On the cover of the May issue of French Vogue, Celine said that she was fine, but her condition required “a lot of work.”

“Five days a week I undergo sports, physical and vocal therapy. I have not overcome the disease as it is and it will always be inside me. I hope for a miracle, a way to cure it through scientific research. But for now, I have to learn to live with it,” declared the singer.

Regarding the possibility of returning to the stage, Celine told the magazine that at the moment she cannot answer: “I don't know. My body will tell me.”

Since the diagnosis was revealed, the singer has only appeared on a few occasions. Recently, she announced the production of a documentary about her life entitled “I: Celine Dion.”

In February, she made a surprise appearance at the 2024 Grammy Awards and took the stage to announce the award for album of the year, which Taylor Swift won for her album “Midnights.”

What is stiff person syndrome?

Stiff person syndrome (SPR) is a rare disease that affects the nervous system, and there is no cure.

“Stiff person syndrome is a rare neuroimmune syndrome, characterized by muscular rigidity, affecting the muscles of the trunk, arms and legs. Sometimes, this syndrome can be limited to only one leg,” explains Alex Baeta, neurologist at BP – Benvecencia Portuguesa de Sao Paulo.

Payta highlights that the main symptoms of the syndrome are muscle stiffness and muscle spasms.

According to the National Institute of Health (NIH), a government agency within the United States Department of Health and Human Services, abnormal posture syndrome affects twice as many women as men, and in most cases, it is associated with other autoimmune diseases, such as diabetes, vitiligo, and anemia. Thyroiditis.

“Scientists still don't understand the causes of RPS, but research suggests that it is the result of a faulty autoimmune response in the brain and spinal cord,” the National Institutes of Health explains.

Treatment is individual and depends on each patient. Medications help control and improve the symptoms of stiff person syndrome, but they do not cure the disorder.

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